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May 18, 2015

DOJ to investigate voting rights violations in California

On Friday, May 15, Thomas F. Coleman received a phone call from a staff attorney at the offices of the Department of Justice in Washington, D.C.  He was informed that a letter of inquiry had been sent in the postal mail to the Judicial Council of California notifying them that the DOJ was investigating allegations of voting rights violations by the judicial system.

The investigation was prompted by a complaint filed on July 10, 2014, by the Disability and Abuse Project of Spectrum Institute.  Although the complaint had specifically focused on systematic violations of voting rights of limited conservatees by the Los Angeles Superior Court, the DOJ decided to broaden the investigation to review judicial practices statewide.

Spectrum Institute has issued a press release about the DOJ investigation. The Daily Journal, California's leading newspaper on legal news, published a short article about the investigation in today's paper.


May 18, 2015

Duties of Court-Appointed Attorneys -- Guidelines from the Bench

Judge Maria Stratton did not mince words at a training program for court-appointed attorneys (PVP) who represent clients in conservatorship cases in the Los Angeles Superior Court.  She told the audience of 150 or so attorneys what they may do and not do in their role as appointed counsel.  To read Judge Stratton's remarks, click here

We will be reviewing a random sample of PVP reports from 2014 and will report our findings to the Judicial Council.  Starting in October, we will start reviewing several PVP reports per month and will see how they compare to the guidelines mentioned above.  


May 1, 2015

Proposals Sent to the Judicial Council of California

The Disability and Guardianship Project of Spectrum Institute sent a 50-page report today to the Judicial Council of California. 

The report contains three proposals for changes to the Rules of Court and one proposal for a change in the Rules of Judicial Administration. 

The changes are intended to improve the education, qualifications, and performance of court-appointed attorneys who represent people with developmental disabilities in limited conservatorship cases.

The report is supported by a 200-page document containing 44 exhibits.  The report and exhibits are available online.

The proposals are the result of more than a year of intense study of the limited conservatorship system in California.  After the proposals for attorneys move from the advisory committees to the full Judicial Council, we will submit additional proposals to the advisory committees focusing on the performance of judges, court investigators and regional centers. For more information about this report and the specific proposals, click here.


April 29, 2015

Mailing to Court-Appointed Attorneys in Los Angeles

Today we mailed a packet of information to attorneys whoa re appointed by the Probate Court to represent people with developmental disabilities in limited conservatorship cases.  We are drawing their attention to a procedure that is available to them (but has not been used) to improve the quality of their advocacy and the outcome for their clients.  The process involves an attorney requesting an Individual Program Plan review at the regional center.  The IPP review would help assess the clients abilities or deficiencies with decision making in seven areas, including decisions as to residence, medical care, financial, education, social relationships, etc.  We believe the use of this available resource is essential to effective advocacy.  To see the packet, click here.

April 22, 2015

Medical Decision-Making Bill Advances in Nevada

The state Assembly in Nevada passed AB 128 after it was amended to address some of the concerns that were raised by the Disability and Abuse Project.  In its original form, the bill would have transferred authority to make medical decisions from an adult with an intellectual disability to another person as soon as the power of attorney form was signed.  We raised many objections to this automatic transfer of authority. For background information on AB 128 and our previous objections, click here.

Proponents of the bill considered our objections and addressed many of our concerns by amending the bill before it was presented to the full Assembly for a vote.  The amended bill is part supported decision making and part power of attorney.  If the patient can communicate, the patient makes the medical decisions in consultation with a chosen supporter.  If the patient cannot communicate, the chosen supporter is the agent who makes the medical decisions.  The patient can never be required to have medical procedures to which the patient objects.

We are pleased with the amended bill.  We will continue to follow its progress and will report what happens when further votes are taken.


April 22, 2015

Voting Rights Bill Advances in California

Senate Bill 589 was approved yesterday by the Senate Elections Committee in California.  SB 589 adds additional protections for the voting rights of people with developmental disabilities in conservatorship proceedings.

The voting rights complaint we filed with the Department of Justice last July is having a domino effect. First there was the passage of AB 1311 which was signed by the Governor last October.  I am informed that judges have been more hesitant to take away voting rights of limited conservatees in view of that new law.

Now there is SB 589.  It replaces the “literacy test” under California law with a new standard for voting competency.  If SB 589 is enacted, a judge would have to find by clear and convincing evidence that a conservatee cannot express a desire to participate in the voting process before a disqualification order can be granted.  What a major change.

The committee report credits our complaint with the DOJ for the passage of AB 1311 and as the impetus for SB 589.  That is very gratifying to know.  If SB 589 is enacted into law, its passage could make our complaint with the DOJ unnecessary and therefore moot.  We will know more about the fate of this bill in the coming months.

April 10, 2015

Letter on Social Rights Violations in Los Angeles case

Dr. Nora J. Baladerian sent a letter yesterday to Judge Daniel Murphy regarding social rights violations in a limited conservatorship case.  The letter was prompted by new rules issued by the Centers of Medicare and Medicaid that affirm the right of recipients to "freedom from coercion."  A recipient must be able "to control his/her own schedule."  The letter suggests that, in view of this new rule, Judge Murphy may want to reconsider, on his own motion, the coercive effects of prior orders that force the conservatee in question to visit with his father despite his repeated objections to doing so.

April 9, 2015

New Article on Court-Appointed Attorneys in Los Angeles

An essay was published today on the website about the need to reform the system of appointing attorneys to represent adults with developmental disabilities in limited conservatorship proceedings.  The essay compliments Judge Maria Stratton, the new Presiding Judge of the Probate Court, for her leadership.  Things are beginning to change.  Much more needs to be done.


April 7, 2015

Letter Sent to California Senator Hannah-Beth Jackson

Dr. Nora J. Baladerian sent a letter today to Senator Hannah-Beth Jackson.  Senator Jackson is the Chairperson of the Senate Judiciary Committee of the California Legislature.  The committee held an oversight hearing on March 24, 2015.  Attorney Thomas F. Coleman testified during the public comment portion of the hearing. 

Dr. Baladerian's letter points out that almost nothing was said at the hearing about abuse of people with developmental disabilities and no attention was given to the dysfunction of the limited conservatorship system that involves this population.  She recommended that a second hearing be conducted to fill that void.  Attached to the letter was an article that describes the hearing.


April 2, 2015

Letters Sent to Three California Judges

Letters were sent today to three California judges in furtherance of our quest to reform California's limited conservatorship system.  The letter to Los Angeles Superior Court Judge Maria Stratton praises three of her recent actions and asks for a meeting to discuss a proposal to improve the local system.  The letter to Court of Appeal Justice Harry Hull thanks him for his ongoing attention to our concerns and lets him know that we are following his suggestion to submit proposals to the Probate and Mental Health Advisory Committee.  The letter to Judge John Sugiyama, chair of the advisory committee, asks the committee to support our proposal for a legislatively-created Task Force on Access to Justice in Limited Conservatorships.


March 26, 2015

Senate Testimony Confirms Dysfunction of System

Although the hearing in the Senate Judiciary Committee in California focused almost exclusively on seniors, we managed to redirect the spotlight for a few minutes to people with developmental disabilities.

Disturbing testimony from a Los Angeles judge revealed facts that confirm our finding that the system is dysfunctional and needs to be audited.  Court investigators must conduct nine home visits on the one day a week allocated for work in the field.  And the court has lost track of thousands of adults who are under its protection. 

Read our summary of the hearing!


March 26, 2015

Open Letter to Commissioner of AIDD

We sent an open letter today to Mr. Aaron Bishop, Commissioner of the federal Administration on Intellectual and Developmental Disabilities.  We asked him to send a letter to the Senate Judiciary Committee of the California Legislature to support our request for a legislative Task Force on Access to Justice in Limited Conservatorships.  We also asked him for suggestions on what other steps could be taken to promote the reform of this broken system in California.

March 23, 2015

Press Release Issued for New Report on Rights Violations

Spectrum Institute issued a press release today to unveil a new report disclosing systematic violations of the rights of people with intellectual and developmental disabilities by California judges.  The report, and its key findings, will be presented on March 24, 2015 to the Judiciary Committee of the California Senate.  (Press Release)

March 20, 2015

Oversight Hearing by Senate Judiciary Committee On March 24

Attorney Thomas F. Coleman is appearing on March 24 to testify before the Senate Judiciary Committee of the California Legislature in Sacramento.  The committee is holding an oversight hearing to inquire into the manner in which California courts are protecting vulnerable adults. 

Part of the hearing focuses on conservatorship proceedings.  Mr. Coleman is presenting the committee with a report by Spectrum Institute issued after an intense year-long review of limited conservatorship policies and practices in California.  The report's findings show that judges, court-appointed attorneys, court investigators, and regional centers are engaging in practices that are out of compliance with state and federal laws.  The report recommends that the Legislature convene a Task Force on Access to Justice in Limited Conservatorships to review the findings of the Spectrum Institute study.  It also proposes that the Legislature direct the Bureau of State Audits to conduct a survey of the practices of local courts in all 58 counties and that it perform an audit of the practices by the Los Angeles Superior Court in limited conservatorship proceedings.  The report and exhibits to the report are available online.

A letter was sent to the Chair of the Committee today (March 20) suggesting that the Committee may want to move Mr. Coleman's presentation from the public comment portion of the meeting onto the official agenda of scheduled speakers.  If not, he will speak during the public comment time slot.

March 18, 2015

Letter to Nevada Legislators

The Disability and Guardianship Project sent a letter today to the Speaker of the Nevada State Assembly.  Copies were sent to other leaders in the Assembly and Senate.  The letter and attachments call their attention to our concerns about AB 128 -- a bill to create a simplified power of attorney form for us by adults with intellectual disabilities.

March 15, 2015

List of Advisors to the Project is Growing

The Disability and Guardianship Project is pleased to announce the names of individuals who have agreed to be Project Advisors.  Future announcements will be made from time to time as additional advisors are added to the list.

March 14, 2015

A New Focus on Washington State

The Disability and Guardianship Project is partnering with parent-advocates Christina Baldwin and Michael Haseltine to review policies and practices on the processing of guardianship cases in Washington state involving adults with intellectual and developmental disabilities.  Activities of the Washington project will parallel what we have been doing in California.  The goals are to identify any deficiencies that may exist in the system and to promote reform where problem areas are found to exist.  Administrative and case records will be reviewed, participants in the system will be interviewed, and disability services agencies and disability rights organizations will be consulted.  The initial focus will begin with Spokane County.  For more information, click here.

March 12, 2015

Some Conservatorship Progress in Los Angeles

Attorney Tom Coleman attended a seminar for attorneys who want to represent proposed conservatees in the Los Angeles Superior Court.  A panel of four presenters spoke to the attorneys at a lunchtime event at the Biltmore Hotel.  Of the 75 attorneys who attended, about 15 of them are already on the panel of attorneys from which the court makes the appointments to represent limited conservatees.  One of the presenters was Maria Stratton, the new presiding judge of the Probate Division of the Superior Court.  Judge Stratton make several statements that were refreshing -- some of which indicated that the work of the Disability and Guardianship Project is starting to create changes.  A transcript containing relevant segments of the seminar is on the website. The limited conservatorship oceanliner is ever so slowly starting to change course.

March 9, 2015

Nevada Power of Attorney Bill in Committee Again

AB 128 was amended by the proponents after the bill received a negative evaluation by Spectrum Institute.  The amended bill was published on the legislative website on March 7 and will be considered by the Assembly Judiciary Committee today.  Thomas F. Coleman and Dr. Nora J. Baladerian submitted three analyses of the amended bill to the committee: Nevada’s AB 128 (As Amended): An Untested Hybrid That Is Part Power of Attorney and Part Supported Decision Making Agreement; Nevada’s AB 128 (As Amended): Financial Impact on State and Local Governments; and Nevada’s AB 128 (As Amended): A Model Bill on Medical Supported Decision Making is Available.

March 8, 2015

Public Policy Conference in Sacramento

Attorney Thomas F. Coleman and Dr. Nora J. Baladerian are presenters on a panel today at a policy conference sponsored by The Arc of California.  Panel members will discuss guardianship reform and alternatives to guardianship.  Materials being distributed to the audience include: Guardianship Reformers; Abuse Statistics; Trauma Informed Politics; Intellectual Disability and Medical Decision-Making Bills; Informational Briefing on Limited Conservatorship Reform; Ten Statewide Concerns About Limited Conservatorships; Freedom of Association of Limited Conservatees; Letter to Santi Rogers (DDS).

On March 9, Mr. Coleman and Dr. Baladerian will meet with Justice Harry Hull, Chair of the Rules Committee of the Judicial Council of California, to discuss the steps the judiciary should take to address the ten statewide concerns mentioned above.


March 5, 2015

New Model Bill on Medical Supported Decision Making Agreements

New model legislation on medical supported decision making agreements is now available.  The new model bill has the support of the Disability and Abuse Project and the Disability and Guardianship Project of Spectrum Institute since it incorporates the principles in our "Framework for Supported Decision Making Legislation."  The concerns we raised to the original model bill do not apply to the revised model bill.  We are very grateful to attorney Jonathan Martinis, director of the National Resource Center for Supported Decision Making, and his partners, for amending the model bill to address our concerns.  We believe that the new bill is something that should be used by advocates to promote state legislation that advances the rights of people with disabilities in medical settings, whether that would be in doctor's offices, clinics, and hospitals or in their interactions with other medical professionals.

To read more about our position on SDM as an alternative to guardianship, click here.

March 1, 2015

A "Rule Out Abuse" Campaign for Physicians

The Disability and Abuse Project is launching a "Rule Out Abuse" campaign for medical doctors.  Dr. Nora Baladerian is spearheading the campaign after years of noticing that, when presented with patients with disabilities who have traditional symptoms associated with abuse, doctors generally do not consider such a diagnosis as a possibility to rule out.  For Part 1 of the literature (an overview), click here.  For Part 2 of the literature (detailed information), click here.


February 25, 2015

Additional Analysis of AB 128

We listened to and read the testimony presented to legislators at a hearing on February 23.  We have published a response, calling attention to issues that were overlooked in the testimony and correcting some facts.  We have also published an analysis of liability issues that may arise for medical providers, notaries and witnesses if AB 128 is adopted in its current form.  Our response and the liability analysis are  both published on the Legislature's website

For links to the bill text and all of our analyses of AB 128, click here.


February 22, 2015

Analysis of AB 128 (Nevada bill on medical powers of attorney)

Two separate analyses are being published by our projects about Assembly Bill 128, a proposal to authorize a new form to be used for medical powers of attorney for adults with intellectual disabilities.  The bill is being heard on February 23 in the Assembly Judiciary Committee of the Nevada Legislature.

An analysis by attorney Thomas F. Coleman raises legal concerns about the bill.  A critique by Dr. Nora Baladerian raises clinical concerns. 

We believe that AB 128, as currently written, poses a significant risk to the legal rights of and well-being of people with intellectual disabilities. 


February 5, 2015

Article on Conservatorship Reform Published in Legal Newspaper

A commentary by attorney Thomas F. Coleman was published today on the opinion page of the Daily Journal, California's largest legal news provider.  The paper is read by judges, attorneys and politicians throughout the state.  Titled "Reform Long Overdue for State Conservatorship Process," the op-ed article suggests that the Judicial Council of California -- the rule making body for the judiciary -- is putting the cart before the horse in its consideration of training programs for attorneys and judges who handle conservatorships for adults with developmental disabilities.  Instead, Coleman says that a thorough review of the limited conservatorship system, with an analysis of costs for systemic and operational changes, should come first.  Then, when state and local officials are ready to implement these changes, should come education and training of probate judges and court-appointed attorneys.  To read the commentary, click here.

February 1, 2015

Request to Department of Developmental Services

We have sent a request to the Director of the California Department of Developmental Services asking that DDS amend regulations on client's rights to clarify that the freedom of association of clients is protected.  Clients have the right to associate with, or decline to associated with, specific persons.  The regulations mention a "right to social interaction" but this needs to be clarified with greater specificity.  The First Amendment rights of Regional Center clients, especially those who are placed under a conservatorship order, are being violated.  Amending the regulation on social interaction may decrease the risk of violations of the freedom of association of limited conservatees.  We encourage people to email the Director, via the Deputy Director Nancy Bargmann, to support this request.

January 21, 2015

Communications with the Judicial Council

After sending letters to the Chief Justice of California, and after meeting with the Probate and Mental Health Advisory Committee to the Judicial Council of California, we finally received an official response to our list of concerns with the Limited Conservatorship System.  Justice Harry Hull wrote to us on behalf of the Judicial Council.  We responded.  We also sent a follow up email to the Chair of the Probate Advisory Committee.  To read this correspondence, click here.

January 7, 2015

Letter to the Presiding Judge of the Los Angeles Superior Court

We sent a letter to the Presiding Judge of the Los Angeles Superior Court today, with a copy to the Presiding Judge of the Probate Division asking for a meeting to discuss problems with the processing of limited conservatorship cases and how to fix those problems.  To read the letter, click here.

January 2, 2015

Special Report on Supported Decision Making

We have gathered a variety of materials we have published on the subject of supported decision making and are publishing them in a single report, titled, 'Supported Decision Making: A Critical Analysis."  Click here to access the report.

December 27, 2014

Task Force Stimulates Changes in Indiana's Guardianship System

The Arc of Indiana spearheaded the creation of a statewide Task Force to examine the adult guardianship system in that state.  After nearly three years of study and analysis, the Task Force recommended several major improvements to that system.  The judicial branch and the legislative branch cooperated and many of those changes are now being implemented.  For more information about these reforms, click here.

November 28, 2014

Listen to audio of our presentation at the Judicial Council

On November 14, 2014, members of the Disability and Abuse Project made a presentation in the conference room of the Judicial Council of California in support of our request for a Task Force on Limited Conservatorships.  An audio recording of the presentation was sent to us and has been uploaded to this website.  Click here to listen to the mp3 recording.


November 25, 2014

Letter Sent to the President of the State Bar of California

A letter was sent today to Mr. Craig Holden, new President of the State Bar of California.  The letter requests that the Board of Trustees convene a Task Force on Limited Conservatorships to investigate the practices of public defenders and court-appointed private attorneys who represent adults with developmental disabilities in limited conservatorship proceedings.


November 24, 2014

California Coalition Joins Call for Conservatorship Reform

The Compassionate Care Coalition of California has issued a report focusing on the Limited Conservatorship System in California.  Findings point to serious deficiencies in the system.  The report recommends a thorough review of the system statewide with major reforms to all of its various components.  The report cites our Justice Denied report and adds new information from a variety of informants. 

After reviewing the report, we issued a news release which was sent to the Daily Journal, the legal newspaper for California lawyers, judges, and lawmakers.  We also distributed a summary of the report to the Chief Justice and to other officials.


November 17, 2014

A Successful Trip to San Francisco

A few of us who are working on the Conservatorship Reform Project went to San Francisco last Friday for a meeting at the headquarters of the Judicial Council of California.  The Judicial Council adopts rules that govern legal proceedings throughout the state, including proceedings involving limited conservatorships.

Along with my colleagues, Dr. Nora Baladerian and Jim Stream, I made a presentation in support of our request for a statewide Task Force on Limited Conservatorships.   Also present was a young man, Stephen, who had almost lost his right to vote, Stephen's mother, and the stepfather of another young man whose First Amendment rights have been violated by the Limited Conservatorship System.

A news story appeared today in the Daily Journal, a statewide legal newspaper read by judges, legislators, and attorneys.  I followed up with a letter to the Chief Justice.  I also sent an email to Judge John Sugiyama, Chairperson of the Probate and Mental Health Advisory Committee -- the committee to which we made our presentation.  That email included a document titled "Ten Statewide Concerns About the Limited Conservatorship System."

Prior to our meeting at the Judicial Council, our group spent some time at the Golden Gate Regional Center.  Many thanks to the Executive Director and the staff for their hospitality.  Also many thanks to Greg Byers, a filmmaker who came to San Francisco to video our activities for a documentary he is working on about the Limited Conservatorship Reform Project.

Other documents submitted to the Committee can be found on the Judicial Council page of our website.

(The photo depicts Stephen and me standing at the reception desk of the Judicial Council of California.)


July 22, 2014

A Review of "Model Legislation" on Supported Medical Decision Making

We have reviewed "model legislation" being proposed for supported medical decision-making agreements and find that the proposed bill has serious defects.  The proposal violates the first principle of medical ethics to "do no harm" because it would give immunity to medical care providers who engage in treatment without informed consent.  We cannot support any proposal that dispenses with current legal and ethnical requirements of obtaining informed consent from a patient or his or her legally empowered surrogate before conducting medical procedures.  To read our review of the legislation, and to access the proposed legislation, click here.  To read additional reviews of it, click here.


July 16, 2014

News Segment on Arise America

Arise America, a division of Arise TV, carried a segment on voting rights for people with developmental disabilities on their news show on Friday, July 11, 2014.  The segment was just uploaded to You Tube today.  Click here to watch the segment.


July 10, 2014

Voting Rights Complaint Filed

The Disability and Abuse Project filed a complaint today with the United States Department of Justice asking for intervention to stop the violation of the voting rights of people with developmental disabilities in California.  The complaint explains that limited conservatees are having their voting rights taken away in violation of federal laws prohibiting states from using literacy tests and laws requiring states to allow people with disabilities to have assistance in the voting process.  The Los Angeles Superior Court is named as the violating party.  For more information, click here.  Read the news stories about the complaint.


June 19, 2014

Position on Supported Decision Making

A position paper has been added to the website.  It analyzes calls to repeal adult conservatorship laws and replace them with a non-judicial alternative called supported decision making. To access the position paper, click here.

June 9, 2014

Letter to Los Angeles District Attorney

Today the Disability and Abuse Project sent a letter to Jackie Lacey, District Attorney for the County of Los Angeles.  Along with the letter, we sent her a copy of the Survey Report.  We requested a meeting with her office to discuss ways to improve the training of investigators and prosecutors in order to prosecute abuse cases more effectively.

June 8, 2014

Letters to Area Boards

Today the Disability and Abuse Project sent a letter to Area Board 1 of the California State Council on Developmental Disability.  A similar letter was also sent to the other 12 Area Boards.  Along with the letter, each Area Board received a copy of the Survey Report, as well as a request to answer the following questions: What actions has your Area Board taken over the past 8 years with respect to the issue of abuse and disability? Have you adopted any policies? Published any educational materials? Conducted or sponsored any educational or training programs? Or taken any other actions on abuse and disability?  We will be posting the results of this "mini survey" in the coming months.

June 1, 2014

Letter to the Department of Developmental Services

Today he Disability and Abuse Project sent a letter to the Santi Rogers, Director of the California Department of Developmental Services, along with a copy of our report, Justice Denied.  The letter asks for a meeting with him to discuss ways to create a role for the department in oversight or auditing of the Limited Conservatorship System.

May 23, 2014

Letter to the California Attorney General

Today he Disability and Abuse Project sent a letter to the Kamala Harris, Attorney General of California, along with a copy of our report, Justice Denied.  The letter asks the Attorney General to meet with us to discuss the deficiencies in the Limited Conservatorship System and how they can be corrected.

May 15, 2014

Letter to the Chief Justice of the California Supreme Court

Today the Disability and Abuse Project sent a letter to Chief Justice Tani G. Cantil-Sakauye in her capacity as Chairperson of the Judicial Council of the State of California.  The letter transmitted our report, Justice Denied, and asked the Judicial Council to convene a Task Force on Limited Conservatorships to investigate the policies and practices within that system on a statewide basis. Update (May 30, 2014):  We received a response from the Judicial Council that our proposal has been reviewed by Justice Harry Hull and that he has referred our report and the proposal to the Probate and Mental Health Advisory Committee for a recommendation.

May 14, 2014

Letter to the Los Angeles County Superior Court

Today the Disability and Abuse Project sent a letter to Judge Michael Levanas, Presiding Judge of the Probate Division of the Los Angeles County Superior Court.  The letter transmitted our report, Justice Denied, and offered to meet with him to discuss ways to improve the Limited Conservatorship System operated by the court. Update (June 5, 2014): Judge Levanas acknowledged receiving the report as well as an invitation for the head of Probate Investigations to attend the Voting Rights Conference.  He said that he passed the invitation and the report on to the her.

December 23, 2013

Letters to State Councils on Developmental Disabilities

Today the Disability and Abuse Project sent a letter to the Arkansas State Council on Developmental Disabilities along with a copy of the 2012 Survey Report.  The letter asks the Council to evaluate and update its 5-year plan so as to incorporate information from the Survey Report.  Over the next few months, a similar letter will be sent to State Councils in all 50 states and the territories.  Update (March 10, 2014): As of today, all State Councils have received our letter and a copy of the Survey Report.

September 5, 2013

2012 Survey on Abuse of People with Disabilities
The First Report: Victims and Their Families Speak Out

Today the Disability and Abuse Project released the first report from the 2012 Survey on Abuse of People with Disabilities.  Some 7,289 people took the survey last year.  The first report focuses on the responses of individuals who were victims of abuse and families whose loved ones had been abused.  The report contains dozens of findings and recommendations that, if studied and implemented, will help improve response to abuse, justice for victims, and therapy for those in need.  To access the survey, findings, recommendations, and the full report, click here.


July 18, 2013

Issue Brief Released on Sexual Abuse of People with Disabilities

In March 2012, the Center on Victimization and Safety of the Vera Institute partnered with the MS. Foundation for Women on a project to learn more about sexual abuse of people with disabilities.  Participants were assembled from a wide range of backgrounds to offer background information, statistics, and recommendations.  Dr. Nora Baladerian was one of the participants consulted by the project.

An Issue Brief released in March 2013 contains the findings and recommendations of this project.  To access the Issue Brief, click here.


July 17, 2013

Social Rights Protection: A Case Study

The Disability and Abuse Project has selected the case of In re Gregory D. to be used in an educational program focusing on the social rights of people with intellectual or developmental disabilities.  In this case, the California Court of Appeal ruled that a parent does not have the right to challenge on appeal a court order that violates the constitutional rights of an adult child.

The case has now returned to the trial court where, at the request of his conservators, the court is being asked to completely take away Gregory's right to make social and sexual decisions.  The conservators want the court to vest authority for such decisions in them.  The Disability and Abuse Project will be monitoring these proceedings and using the actions of the parties, attorneys, and the court, as a teaching tool to educate others throughout the state on how social rights were handled in this case.  In re Gregory D. will become a model for how to, or how not to, protect the social rights of adult conservatees with intellectual or developmental disabilities.

For a statement about this case study, click here.


June 7, 2013

The Right of Adults to Say "No" to Forced Visitation

Two letters were recently filed in the California Supreme Court supporting the right of an adult with developmental disabilities to refuse to visit a parent if he does not wish to do so.  One letter was filed by the Disability and Abuse Project.  The other was filed by Dr. Nora J. Baladerian in her capacity as a clinical psychologist.

Gregory, an adult with a developmental disability, has on many occasions expressed his desire not to visit with his father.  Gregory is subject to a conservatorship and the dispute over visitation was heard in Los Angeles Superior Court.  Despite Gregory's wishes not to visit his father, the court ordered him to do so, and ordered the caregivers in the home where he lives to pressure him to see his father.  Gregory's mother, Linda S., was a party to the conservatorship proceeding.  She argued that Gregory should have the right to veto any visit.  An attorney appointed to represent Gregory was mostly silent.  He failed to advocate for Gregory's right to say "no" to any particular visit he did not want to participate in.

Linda S. appealed the order of forced visitation, claiming that it violated Gregory's constitutional rights.  Gregory's attorney failed to participate in the appeal.  The Court of Appeal ruled that Linda was not harmed by the order and therefore could not appeal.  It concluded that she did not have the authority to argue for the protection of Gregory's constitutional rights on appeal.  So the appeal was dismissed, without the Court of Appeal ever deciding the issue of forced visitation and the right to say no.

Linda petitioned the California Supreme Court to review the case.  The petition is pending.  The letters of the Project and Dr. Baladerian argued that the Court of Appeal should have appointed another attorney to represent Gregory on appeal since his own attorney failed to participate.  The letters also argued that when, as here, a conservatee is ordered to visit a specific person, the conservatee should have the right to say "no" to any particular scheduled visit, and that the attorney for the conservatee should not be able to waive his client's constitutional rights in this regard.

We will advise our website visitors when the Supreme Court takes action in this case.  A decision should be made before the end of June.  (Conservatorship of the Person of Gregory D., Supreme Court No. S209942)

This issue is not going away.  A growing number of mothers have contacted the Project about this issue.  In each of these cases, an adult child with a developmental disability, has expressed a desire not to visit with the father.  Often, the child acts out when the father comes near the child, and if a visit occurs, the adult child shows signs of anger and frustration, with adverse physical manifestations and resulting psychological harm, afterwards.  The Project will be encouraging these mothers, and others like them, to form a support group to help each other and to advocate for the rights of their children.


April 9, 2013

Guide on Responding to Suspected Abuse

A Guide on Responding to Suspected Abuse of People with Disabilities has been added to the Resources section of the website.  The Guide is for parents or family members whose loved one receives residential, transportation, day program or other services.  To view of download the pdf file, click here.


May 21, 2012

Prof. Dick Sobsey Joins the National Survey Team

The Disability and Abuse Project is pleased to announce that Professor Dick Sobsey has become the Principal Survey Analyst for the 2012 National Survey on Abuse of People with Disabilities. 

Dr. Sobsey is a Professor Emeritus of Educational Psychology at the University of Alberta in Edmonton Canada. He currently serves as Director of the JP Das Developmental Disabilities Centre and Director of the John Dossetor Health Ethics Centre.

He has worked with children and adults with developmental disabilities since 1968 as nurse, teacher, and transdisciplinary team leader as well as a researcher and advocate. He is the author of more than 200 books, articles, and commentaries related to health, educational, and social aspects of disability.

Prof. Sobsey will assist the Disability and Abuse Project in interpreting the results of the survey. He and other members of the National Survey Team will collaborate together to identify ways to use the results in a variety of educational, policy, and advocacy efforts

For more information about Professor Sobsey, click here.


May 1, 2012

National Survey on Disability and Abuse is Released

In collaboration with The Arc of Riverside County, the Disability and Abuse Project is releasing the National Survey on Abuse of People with Disabilities.  For more information about the survey, and for a link to the survey itself, click here.


April 6, 2012

OVC report includes section on victims with disabilities

The Office for Victims of Crime issued a new report on the status of services to victims of crime.  The report, "Rising to the Challenge: A New Era in Victim Services" includes a section on victims who have disabilities.  That section, which begins on page 53, mentions a training manual and DVD, produced in 2009 with the assistance of Dr. Nora J. Baladerian, which has been distributed to more than 5,200 recipients.  To access the complete report, click here.


March 20, 2012

A section has been added for Project Updates

A short email newsletter will be sent to supporters of the Project periodically.  It will keep them advised of our activities.  The first Project Update was sent today.  To access this new section of the website, click here.


March 18, 2012

Resources section is added to the website

A new section for Resources has been added to the website.  The first material was added to this section for use in the presentation of Dr. Nora J. Baladerian at the National Symposium on Child Abuse in Huntsville, Alabama this week.  Material will be added to this section as time permits.  To access the Resources section, click here.


March 9, 2012

Archives section is added to the website

The former website of the Disability and Abuse Project (2000 - 2005) is now available through the Project Archives section of this website.  To access the Project Archives, click here.


February 12, 2012

Profile of Lori Brown:  Forensic Interviewer

The Athens Banner-Herald published a feature story today focusing on Lori Brown, a forensic interviewer with the Sheriff's Office in Oconee County, Georgia.  Lori will be a presenter next month at the National child Abuse Symposium in Huntsville, Alabama.  Lori is a consultant to the Disability and Abuse Project.  To read the full story about Lori, click here.

February 11, 2012

Autism Light: Focus on Autism's Diverse Heroes

Autism Light is a blog that honors diverse heroes to the world of autism.  Yesterday's blog featured Dr. Nora J. Baladerian. Alan Stokes, the author of the blog, wrote: "It is my experience both as a parent of a child with autism and as one working in the field of abuse prevention that Dr. Nora Baladerian's specialization and expertise is very much needed today."  To read the full story, click here.


February 9, 2012

APA Issues Guidelines for Assessment of
and Intervention with Persons with Disabilities

The January 2012 issue of American Psychologist contains several new practice guidelines for several specific populations: seniors, LGBT clients, people with disabilities, and parents.  Among the 22 guidelines for clients with disabilities is one directed to disability and abuse. 

Guideline 11 recommends that psychologists should strive to recognize that people with disabilities are at increased risk for abuse and they should address abuse-related situations appropriately.  The guideline recognizes that people with disabilities are victims of violence and abuse at a much higher rate than the population at large.  This is true for men as well as for women.  Abuse and neglect can be the initial cause of a disability or abuse may exacerbate an existing disability.  To read more, click here.


February 3, 2012

Combating Violence Against Women with Disabilities

Thanks to Russell Butler for bringing to our attention the following article in the American Bar Association Criminal Justice Section Newsletter: "Barrier Free Justice: Combating Violence Against Women with disabilities."  To read the article, on page 7 of the newsletter, click here.

February 2, 2012

Georgia school found liable for disability-abuse by teacher

An administrative law judge filed a decision yesterday finding the Fulton County School District liable for repeated physical, verbal, and emotional abuse committed by a special education teacher against students with developmental disabilities.  The decision followed administrative trial arising out of a complaint filed by a parent (on behalf of her child) alleging abuse by the teacher, knowledge of the abuse by administrators, and a cover-up of the situation by the school district.

For a copy of the full decision, and quotes from various portions of it, click here.

January 16, 2012

Click here to view a new comment about the value of the newsfeed.

January 11, 2012

Click here to view and listen to a You Tube video of public defender Billy Edwards discussing how Fetal Alchohol Spectrum Disorder (FASD) is relevant to the work of a criminal defense attorney.

November 23, 2011

Dr. Nora's Blog has been added to the website.  She, and guest bloggers, will periodically post commentaries to the blog.  To access the main page of the blog, click here.

October 24, 2011

Dr. Nora Baladerian was quoted in a newstory which was added today to the website.  The Associated Press story focused on the financial abuse of people with intellectual disabilities.  To read the story, click here.

September 10, 2011

A tribute was added for International FASD Day.

Comments were added about the Newsfeed.




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